Saturday, April 16, 2011

Ukiah's Birthday

It feels like a dream, his birth. And yet I can remember everything in exacting detail. I won't bore you with those details but that was all to say its still very fresh, and at the same time very distant. Three years ago yesterday, we brought an incredible spirit into the world. A year ago on April 5th, we lost that incredible spirit.

We're still trying to sift through what those dates mean to us and how we're supposed to get through those days. On April 5th, we went to George Mark House, walked the gardens, had a few good cries, took solace at their fountains, found the rock with his name on it at one of those fountains, said hellos, hugged necks, went to our favorite pizza place and came home. Doesn't sound like allot but believe you me it was exhausting.

Yesterday, we didn't want to wallow, we wanted to celebrate. So we went to San Francisco. We went to a museum, had lunch, bought cream puffs at the most amazing place in the city (Dear Pacific Puffs on Union, do you deliver, because there is one pregnant lady in Livermore who wishes you did).

We celebrated his life and by extension our own. It was nice, not to fraught with tears.

I did have one moment though. On the way out of the museum, we saw a lady with a little girl in special wheel chair. I could tell just be looking that the little girl was obviously special needs. If I had to guess, I'd say she had cerebral palsy. I was at once hit with two conflicting emotions. One was elation. I love when parents of special needs kids take them out and give them experiences as if they were any other kid. It makes me happy, as if those parents and those kids are going on as if whatever diagnosis isn't a hinderence but something they can overcome.

At the same time, I was hit with fact that I wished that could've been Ukiah. I would've given the world to load him up a car and go to a museum, hit the beach, take in a movie with him. He deserved all the experiences of the world, and because of his health issues, he got to have very few. That's one of the many heartbreaks I've had to face unfortunately, one that I'm not likely to get over, at least not any time soon.

There is a bright spot to yesterday. My giving page raised over 800 dollars in a day. Its current total is at 2,319! The lovely and wonderful people through Tomato Nation's fundraiser did that. Which is totally awesome. Thank you all for making my day a little brighter, and for celebrating my son's legacy. I appreciate it.

No comments: