I wanted to boo, hiss, seethe, make some motion that I hated
what they were doing to me. But my body, as it always had, was holding me
motionless. I wanted them to know what they were doing was wrong had been wrong
my entire life and that this procedure they were talking of performing was the
worst possible idea and not what I wanted at all. But the people ‘taking care
of me’ as it had always been, were paying me no mind.
It’s not like I’m not use to people making decisions on my
behalf, decisions I didn’t want made, decisions I can’t fight. It’s not like
I’m not use to people underestimating my mind because my own body has trapped it,
held it captive for years. Why should this place be any different?
Being held captive is one thing, but being tortured for needless
reasons is an entirely different thing. I want, no I need someone to listen to
me, to find a way to hear my mind when my body won’t speak.
Nurse Jane is coming. She’s sad. I know she doesn’t like
what they are doing to me, what they are going to do to me. Maybe I have some
time to convince her that what they will be doing to me tomorrow is wrong.
Maybe there’s something I can do to make her listen.
What is that at the corner of my eyes ? It’s wet and running
down my temples. Are those tears? Am I capable of tears? Will that be enough to
convince her, them, all of them, that this is against my will?
All I can do is try and cry until somebody listens.
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The above short story is for this week's Trifecta challenge word boo:
1
(interjection)
used to express contempt or disapproval or to startle or frighten
2 (noun)
a sound that people make to show they do not like or approve of someone or something
3 (verb) to show dislike or disapproval of someone or something by shouting “Boo” slowly
used to express contempt or disapproval or to startle or frighten
2 (noun)
a sound that people make to show they do not like or approve of someone or something
3 (verb) to show dislike or disapproval of someone or something by shouting “Boo” slowly
It was inspired by this story I read yesterday that broke my heart. If you think it's too long or it sounds too heartbreaking, I'll try and give you the cliff's notes. It's essentially about a girl with cerebral palsy whose parents deliberately infantalized and sterilized her so that her body would stay the same size as what they believe her brain function to be. The story is also about a person who lived through a similar experience and how heartbroken she is by this decision. It's an incredible but devastating article and I wrote this story above, partly because this thing wouldn't leave me and partly as a way for advocating disabled rights, no matter the age or brain capability.
As some of you know, I had a son with special needs who passed away ten days before his second birthday and everyday I struggle with the decision we made to let him go because I don't know if that's what he really wanted. Despite his disabilities, he had a voice, an incredible, unique personality and a mind that wanted to fight to communicate and to work properly. I would've fought to my very last breathe to make sure he had that right. I have another blog called Ukiah's Heart, inspired by him, where I try to do just that for all the kids just like him by talking about issues revolving around children with special needs, parents with special needs, and bereaved parents. If this touched you at all, do your part by educating yourself at my other blog, and the other blogs I link to. Also, stop by George Mark House's website and educate yourself about the wonderful work they have done for families like mine and need help to continue to do.
Thank you, in advance to all the Trifecta members who read this. You're all gems.